Caregiver Resources

The information on this page is intended to provide some helpful information to support you and your family as you care for your loved on hospice.  Since each situation is unique, not all of the links below will be relevant to you, but hopefully some of it will be helpful.  The caregiver links are for informational purposes only; we cannot guarantee, endorse, or recommend any of them as they are from outside sources.  If you notice any of the resources has inaccurate information, please let us know.

Please contact us at 314.953.1676 or email griefsupport@bjc.org if you are in need of any other resources, information, or grief support.   ​

Hold My Hand - Caring for a Loved One 

Caring for a dying loved one is not easy. You may have known the end of life has been approaching or you may have just recently been told that your loved one’s end may be soon. Either way, you may not feel prepared to give care. It is normal to feel sad, afraid, helpless and even angry. Hold My Hand - Caring for a Loved One booklet is a resource provided by BJC Hospice for families to help them understand the needs of facing end of life care. It provides common symptoms and occurrences along with care-giving tips. Our hope is to prepare you so that you, too, can find comfort in knowing that what is occurring is natural and give you confidence so you can support your loved one’s with his or her greatest needs at this time — comfort and support.

Caregiver Tips 

As a caregiver, you might find yourself facing new responsibilities, many of which are unfamiliar. There are things you can do to make the caregiving process easier for both you and your loved one. The tips, listed below, can help you get the support you need while caring for someone you love.

Advance Directives and Legal Affairs

Compassion Fatigue

Managing Medicines at Home

Massage Therapy

Music Therapy

Tips from a Physical Therapist and Occupational Therapist

Tips from Registered Nurses

Questions to Ask Before Taking New Medications

Your Information Sheet

Caregiver Classes 

Monthly classes for those caring for a loved one.

  • 2019 Caregiver Classes Flyer
  • Classes are held monthly -- attend as many topics as you like
  • There is no charge for classes, materials or literature
  • Registration is not necessary
  • Classes feature personal and professional insight from BJC employees who care

Class Schedule

1 p.m-2:30 p.m. | Second Tuesday of the month, from January-December.

Missouri Baptist Medical Center | 3015 N Ballas Road (Main hospital entrance) | Auditorium 1 | St. Louis, Missouri, 63131

To register, call 314.996.LIFE (5433)

Classes

Medication Management and Nutrition

Jan. 8 & July 9
A pharmacist will give tips for setting up, storing, recording, and managing medications.  A registered dietitian will teach you how to help meet dietary requirements and manage physician-prescribed diets.

Supporting the Caregiver

Feb. 12 & Aug. 13
Health care professionals, including a registered nurse and a rehab therapist, will provide helpful advice in providing daily home care giving.

Practical Tips for Day-to-Day Home Care

Mar. 12 & Sept. 10
Health care professionals, including a registered nurse and a rehab therapist, will provide helpful advice in providing daily home care giving.

Home Care Choices and How to Find Assistance at Home

Apr. 9 & Oct. 8
Learn the difference between insurance-approved skilled home care and other home care choices, including private duty, home medical equipment, supplies and other resources to help in the care of your loved one.

Legal Matters and Goals of Care

May 14 & Nov. 12
An attorney will present information on important legal matters to address with your loved ones. A palliative social worker will share ways to discuss goals of care and long-term planning. Advance Directives will be discussed.

Alternative Therapies

June 11 & Dec. 10
There are many ways to cope with stress and different therapies will be discussed, such as music therapy, massage therapy, pet therapy, and more.  This will be an experiential class, with enough room for personal questions and needs.

Instructors are specialists with BJC Home Care and BJC Hospice at Missouri Baptist Medical Center. Additional experts will also supplement class instruction, where indicated. This is not a class for continuing education credits or patient care technician certifications. Thank you to: Patient and Family Advisory Councils of Progress West Hospital, Barnes-Jewish St. Peters Hospital, and Siteman Cancer Center at Barnes-Jewish St. Peters for their input on the class content.

"While inside patients' homes, we've learned that caregivers have questions, such as: 'How do I turn someone in bed?' or 'How do I administer medication?' These classes give them the opportunity to ask questions directly of our professionals."

Barbara Westland Director of BJC Hospice

Caregiver Links

AARP's Care Connection

Aging in Place

American Bar Association

American Geriatrics Society Foundation for Health in Aging

American Heart Association

Alzheimer’s Association

American Diabetes Association

American Parkinson Disease Association

Area Agency on Aging

Association for Conflict Resolution

Caregiver Resource Network

Caregiving.com

Family Caregiver Alliance

Full Circle of Care

Health In Aging

Help Guide

Medicines in My Home -- U.S. Food and Drug Administration

Medlineplus.gov

National Alliance for Caregiving

National Cancer Institute

National Caregivers Library

National Council for Aging Care

National Family Caregivers Association

National Hospice and Palliative Care Organization

Today's Caregiver Magazine Online